To improve the quality of life of persons with neuro-developmental disabilities (NDD) by providing interventions that are life-long, deep and holistic.
To deliver continuous, high-quality engagement in the areas of daily living, life skills, vocational skills, social inclusion, recreation, health, safety and complete well-being for every individual in our community.
Our focus and methods at the Centre for Children, Respite Care and Day Activity Centre are informed by a scientific understanding of disability, but we derive our everyday energies from a desire to infuse everything we do with respect, for the Dignity of each person in our community.
We believe that social and economic status must not be allowed to form a barrier to a Life of Equality.
We believe that intentions matter, and that they animate each task, each decision, and each outcome.
What is NDD?
Children with ‘Neuro-Developmental Disabilities’ describe situations in which neurological conditions are integrally associated with functional impairment.
NDD are a group of disorders in which the development of the central nervous system is disturbed. This can include developmental brain dysfunction, which can manifest as neuro-psychiatric problems or impaired motor function, learning, language or non-verbal communication.
Some of the more common NDD include:
1. Intellectual disabilities.
2. Down syndrome.
4. Tourette syndrome.
5. Cerebral palsy.
6. Spina bifida.
7. Fragile X syndrome.
8. Fetal alcohol and drug-related syndromes.
Disability in India
The stories of disability in India are rather mixed: heroic individuals alongside neglected communities, progressive policies alongside lackadaisical implementation, selfless NGOs alongside crumbling state infrastructure. But what remains constant through all of them is the gap in service. India has over 2 crore people with disabilities and hundreds of organisations working to serve them. Yet, fewer than 40% of them are reached by professional care, whether provided by government or a civil society organisation.
The most marginal among this enormously underserved community are moderately to severely intellectually disabled children and adults, most of whom need intensive care throughout their lives.
At FAME INDIA, we have pioneered a scientific yet empathetic approach to supporting children and adults with Neuro-Developmental Disabilities (NDD), a scientific term for a range of intellectual disabilities). When we started the Centre For Children (CFC) in 2001, there were fewer than a handful of organisations working with this community whose needs are typically much greater.
Today, 17 years later, FAME INDIA has grown to provide a much wider range of services and resources for not only school-age children but also adults and their families/caregivers.
FAME INDIA remains a pioneer in both, serving this niche community as well as in developing methodologies and approaches, especially in working with adult communities. This does not make us proud, it makes us even more determined to intensity the change we are creating.
At FAME INDIA, we are building models of best practices to create enabling environments for persons with NDD, from Centre For Children to Respite Care to lifespan management programs. Because we believe that while the need is enormous, we must remain grounded in our commitment to bettering the quality of each lived day for each disabled person.